Audra Coldiron

Hi there
I came across your site while trying to investigate salmon oil and oligodendroglioma! I was also diagnosed in 2006 with a oligo - still around and well. I have written a book opened a brain tumour foundation in South Africa as there was NOTHING - but it is hard work! All the best for your future health. It is encouraging to see patients surviving!

warm regards!!

www.deirdrekohler.com

Hey Audra, My name is Liz and I have come across your blog some time ago. I am happy to read that you are doing really well and are actively engaged in expanding your business's. It is a great to see that cancer is not controlling your life anymore and you are actively engaged in living your life full throttle with your husband and children.
That said, since your blog is a great resource for someone going through cancer I wanted to reach out to you to see if you were interested in a new online social support network (that I am the community manager of!) called I Had Cancer. It is a new and free social support network focused on connecting people based on experiences with cancer so that they can easily communicate with one another and share information. I would love to tell you more if you are interested, so please let me know! Because I was so struck by your writing I would love to send you an early-access pass with extra invites for others you may know going through this journey.

Either way, thank you so much for your writing. Take care and best regards.
-Liz@ihadcancer.com

I grew up Right next to Johnny Raye's House in the flatwoods. Your Grandfather is My Grandfather's Uncle.My Uncle Danny Raye was named after him.I've told my family(your's too) about your situation and were all going to pray for you .My wife's father is a Preacher and I'll make sure we keep you in our thoughts. God Bless You.

My Name is James Coldiron My Grandfather is Walter Coldiron. I have uncles Jerry Danny Charles and one aunt Janet if anyone could tell me about my grandfather or his father please let me know at jtcoldiron485@email.wilkescc.edu thank you

Hey there. Congrats on your long life. I was diagnosed with the same tumor on Dec 1, 2010. One patholgy lab came back and said it was a mixed olio, but then moffitt looked at it and said it was not mixed. Both 1p19q are deleted which are good things. Found out by having 7 biosbys and b/c it was near my speach center and they didn't want to "mess me up." I have been reffered to moffitt in Tampa and when it gets to a certain size they will take it all out that they can. Hope it goes well. The awake surgery scares the hell out of me. I have a 2 year old son that looks so much like yours and a great wife. My brother in law got diagnosed with a tumor in his ventricle 1 month after me and he is 3 week younger then me, needless to say my wife is a trooper. Anyway any detail on where yours was etc?

Just a quick note to say thank you for authoring my daughter's favourite holiday song. She's also a Josie and the Pussycats fan, and loves your take on it, too. Sad to hear you're not making more music, but glad to hear the business is doing well. Totally shocked to hear about your cancer diagnosis, but very thankful to hear that your beating it, and living a wonderful life. Keep up the fight, take care!

I had brain surgery done on 8-25-2010. I have a 16 inch scar from one ear to the other across my head. My hair is growing back but my Drs arent moving to fast on my situation. I havent found out much about it. I dont even know what treatment yet. They did tell me its a type 2. And if I didnt go to the hospital when I did I would have died. I'm 20 years old. I also have the most amazing Fiance ever and the best family ever they are all by my side but you know the feeling of how hard it is to know that u are the one going through all the treatments and needle pokes and procedures. I do thank God for not taking me when this cancerous tumor wanted me to go.

Hi Audra. My name is Irina.
I am sorry so much for my English...But anyway I'll try to contact with you.
I was diagnosed with Oligo II in November of 2009. Being in the right frontal doctors were able to remove it.(size was appr.5*3*4sm).Good condition after surgery,no any neurological problems.
No any treatment was recomended on that time-only control MRI every 3 months.And there is no progression of the tumor till this time.
But I get in touch with Moscow specialists and thy said me that usually the advise radiation therapy in the same cases-for prophylaxis.
I also trust to my doctors (they are the best in our country) and another point-I WANT to trust them in this question because I DON"T WANT to do radiation theraphy(so many complications...)As I know, the doctor's oppinions are too different in this question with Oligo2...Some of them advise radiation after surgery, some of them-chemo, another way-just control by MRI.And any of these opinions are may be right.
Please could you please tell me about traditional practice in your country with such a treatment.Do you no any cases , when no chemo or radiation teraphy were recomended?
It is very difficault decision for me and all my familly...
Dear Audra, I hope that our problem will never touch us in future!Good luck to you and you familly!God bless you!
Excuse me for my English (it's far from good),but I will be glad to recieve any messages from you any anyone from this blog.
Best regards, Irina.

My son had a seziure and stroke like symptoms on Thurs and Friday had brain surgery after discovering a mass. They have determined it is Oligodendrogliomas path report is not back yet. We are on pins and needles with little or no direction. We are fully committed to finding the right treatment and doctors. We need help in the what next step. No insurance is going to make this very difficult. His precious wife of 3 years is taking fantastic care of him they are living with my husband and I. Mickey is 27 and in great phyical condition until this. Scared with the unknow help us if you can.

Hi Audra, and everyone else. My name is Mandy. I was diagnosed with Oligo II back in April of 2008. Being in the right frontal they were able to remove it. I went for a year w/o any changes. Last summer my oncologist noticed a "change" not progression, but erring on the side of caution, he recommended I start chemo. I agreed and am on my 8th month. My doc feels very encouraged by my response to the Temodar and I feel pretty good while I'm taking it. My goal is to postpone radiation for as long as possible... or forever. I believe that healing happens today and I pray mightily for it! I feel very lucky with how things have gone so far. I know everyone on here has had the same fears, negative thoughts and roller-coaster emotions. I've allowed myself to have some really bad days, but what it really comes down to is that none of us has an expiration date stamped on us. No matter what a Dr. says, they have no idea how long any of us will be here and worry will not add one minute to our lives. So, take one day at a time, stay informed and control what you can. I wish you all the best. Congrats on the new baby Audra. I admire your faith! I'm here to support each and every one of you. Feel free to contact me at mandysparks72@gmail.com.